How will I be supported?

Helpful tools and resources are right here

You won't have to go far to receive multiple myeloma treatment support because there are helpful resources right here on Maybe you could use a hand staying on track with treatment or maybe you need help starting a conversation with your doctor. This section includes a dosing calendar, conversation starter, and other tools to help you on your journey. Take a look through the support offerings and see what's possible!

Hear from others who may be going through a similar experience. Find a patient support event near you.

There's so much info out there for multiple myeloma; starting treatment can be daunting. These resources have given me the tools I need to stay on track with my treatment.

Healthcare team conversation starter

Get the most out of your visits by working together with your healthcare team

Remember, you are not alone in treatment. Your doctor and nurses, along with your caregiver, are your number 1 resources for any questions or concerns you may have about NINLARO® (ixazomib) and multiple myeloma. By working together and following these helpful tips, you may be able to get the most out of your time with your healthcare team.

  • Create a partnership with your healthcare team that has clear lines of communication
  • Establish trust by having open discussions and making treatment decisions together
  • Prepare for your visit by tracking symptoms and potential side effects in your NINLARO planner
  • Ask questions if you're uncertain. There's no such thing as a silly question
  • Take notes during your visit
  • Review this discussion guide prior to your visit for a productive conversation

Common questions to discuss with your healthcare team

Starting a new treatment for multiple myeloma can be overwhelming. You may be concerned about how the treatment will affect your lifestyle, impact you financially, or you may have questions about what to expect. Review the questions below in preparation for your next doctor's appointment to help you get the most out of your visit. You can also print these questions and write down any additional thoughts to make sure any concerns are addressed.

Multiple Myeloma Treatment QuestionsGeneral questions
  • Can you help me understand the differences in available multiple myeloma treatments? 
  • What are the different treatment schedules for each?
  • How effective is the treatment you're recommending? 
  • How long will I receive multiple myeloma treatment, and how will it be given? 
  • What are the side effects of the treatment? 
  • Can the dose be adjusted if there are side effects?
  • How will I know if my multiple myeloma is responding to treatment? 
  • What does it mean if I achieve remission? 
  • These are the medications and supplements I am currently taking (be prepared with a list). Do these affect my treatment, and how? 
  • Is there assistance to get back and forth from my medical appointments?
  • Will I need home healthcare?
  • Are there patient support groups that you might recommend?
  • Can I make plans to travel?
Multiple Myeloma Treatment ResponseAfter responding to treatment
  • What happens when I begin responding to treatment? How can I tell? 
  • If the myeloma has responded to treatment, do I continue with the same therapy?
  • What happens after I complete my treatment?
  • What happens if/when the multiple myeloma comes back (relapse)?
  • How will I know if the multiple myeloma is getting worse?
Relapsed Multiple MyelomaAfter a relapse
  • What happens if I stop responding to my treatment?
  • What treatment options are available to me? 
  • Do I need a different type of medication?
  • How effective is the treatment you're recommending? 
  • How long will I receive treatment, and how will it be given? 
  • What signs might show that I am responding to treatment?
Multiple Myeloma Daily LifePhysical and daily life
  • Will I be nauseous?
  • Will I have diarrhea?
  • Will I be exhausted?
  • Can I eat all kinds of foods?
  • I've had chickenpox. Is there anything I can do to lessen the chance of getting shingles?
Multiple Myeloma Treatment CostPaying for treatment
  • Who can tell me about the cost of the various treatment options?
  • How do I get treatment if I don't have insurance?
  • What organizations or resources are available to help me pay for treatment?
Multiple Myeloma TestsLab work and tests
  • What typical tests will I need?
  • What scans will I need? 
  • How often do I need them?
  • What tests/results should I keep track of?
  • Can you explain the results of my blood and urine tests?

Don't hesitate to ask about other tests you may be curious about.

Multiple Myeloma Treatment Side EffectsSide effects
  • Are there signs or symptoms I should look out for?
  • What should I do if I experience any side effects?
  • What side effects should I look out for at this point in my treatment?
  • Should I expect any new or worsening symptoms at this point in my treatment? 
  • I experienced side effects with the last treatment. Will they be similar with my new treatment?
  • What side effects have been reported with this treatment?
  • How can I recognize the signs and symptoms of these side effects?
  • Can I help prevent any side effects from treatment?

Multiple myeloma glossary

Common terms you may come across during multiple myeloma treatment

As you have conversations with your healthcare team and make treatment decisions together, reference this glossary to better understand medical terms.

ANEMIA: A low level of red blood cells or hemoglobin. This condition can cause a number of symptoms, including shortness of breath, weakness, and fatigue.

ANTIBODIES: Special proteins made by certain white blood cells (plasma cells and B cells) that fight infection and disease.

BONE MARROW: The spongy inner part of bones where blood cells are made.

CLINICAL TRIAL: The testing of a new medical treatment on a selected disease population. It helps determine if the treatment is safe and effective enough to be offered to the larger population with that disease. Clinical trials are often done in phases.

COMPLETE RESPONSE (CR): When there are 5% or fewer plasma cells in the bone marrow and lab tests show no myeloma proteins.

DEXAMETHASONE: A steroid medication that is similar to a chemical produced by the adrenal glands and is used to treat many conditions, including certain types of blood cancers.

EDEMA: Swelling caused by excess fluid in body tissues.

HEMOGLOBIN: A protein in red blood cells that carries oxygen in the blood to all parts of the body.

HYPERCALCEMIA: A level of calcium higher than normal in the blood. This condition can cause many symptoms, including loss of appetite, nausea, thirst, fatigue (tiredness), muscle weakness, restlessness, and confusion.

LENALIDOMIDE: A drug that may help the immune system kill abnormal blood cells or cancer cells.

M PROTEIN: An abnormal antibody found in unusually large amounts in the blood or urine of many people with multiple myeloma and other types of plasma cell tumors. Also called monoclonal protein.

MAGNETIC RESONANCE IMAGING (MRI): A technique that uses a large magnet and radio waves to look at organs and structures inside your body.

MEDIAN: The middle number in a set of data. In other words, half of the numbers in the group are more than the median and half of the numbers in the group are less than the median.

MULTIPLE MYELOMA: A cancer of the plasma cells (white blood cells that produce antibodies).

MYELOMA CELLS: Cancerous plasma cells.

NEUROTOXICITY: A disease symptom or treatment-related side effect that can cause damage to the nervous system.

NEUTROPENIA: A condition in which there is a lower-than-normal number of neutrophils (a type of white blood cell).

OVERALL RESPONSE RATE (ORR): A percentage of patients with a partial response or better in a clinical trial.

PARTIAL RESPONSE (PR): A greater than 50% decrease in M protein, also called partial remission.

PERIPHERAL NEUROPATHY (PN): A condition that causes tingling and burning in the hands or feet. It can be caused by issues with metabolism, infections, injuries, and exposure to drugs or toxins.

PLACEBO: An inactive pill, often called a "sugar pill," that may be given in clinical trials to compare the effects to the active drug.

PLASMA CELL: Special white blood cells that produce a specific antibody.

PLATELETS: A type of blood cell that helps prevent bleeding by causing the blood to form clots at the sites of blood vessel injuries (internal and external).

POSITRON EMISSION TOMOGRAPHY (PET) SCAN: A technique that uses a mild radioactive marker to reveal the locations of cancer cells in different parts of the body.

PROGRESSION-FREE SURVIVAL: The length of time during and after treatment that a patient lives with the disease but it does not get worse.

PROTEASOME: A part of a cell that breaks down unneeded proteins.

PROTEASOME INHIBITOR (PI): A drug that blocks the action of proteasomes.

PROTEIN: A molecule made up of amino acids and are needed for all cells in the body to function properly.

RED BLOOD CELLS: Cells that carry oxygen to all parts of the body.

REFRACTORY: When cancer is resistant to treatment.

RELAPSE: The return of a disease or symptoms after a period of improvement.

SHINGLES: A disease caused by the varicella-zoster virus—the same virus that causes chickenpox.

STABLE DISEASE: Cancer that is neither decreasing nor increasing in extent or severity.

STEM CELL: An early cell that matures into various types of cells in the body.

STEM CELL TRANSPLANT: A procedure that infuses healthy cells into your body to replace damaged or diseased bone marrow. These injected stem cells make healthy blood cells. Cells from your own body (autologous transplant) or from a donor (allogeneic transplant) may be used.

THROMBOCYTOPENIA: A condition in which there is a lower-than-normal number of platelets in the blood. It may result in easy bruising and excessive bleeding from wounds or bleeding in mucous membranes and other tissues.

VERY GOOD PARTIAL RESPONSE (VGPR): A greater than 90% decrease in M protein. Also called very good partial remission.

WHITE BLOOD CELLS: Formed mainly in the bone marrow, these cells help protect the body from infection and disease.

Helpful tools for your multiple myeloma treatment journey

Conversation starter

This guide includes jumping-off points for your conversation and helpful tips to have the most effective conversation with your healthcare team. Review this before each doctor's appointment.

Multiple myeloma glossary

Brush up on some common multiple myeloma terms so that you are equipped for treatment conversations with your healthcare team.

Lab test tracker

A comprehensive tool that includes a worksheet that can help you record and better understand your lab tests.

Patient planner

Document your treatment with journal entries tracking how you are feeling, then discuss these entries with your doctor.

Blank treatment calendar

Use this calendar each month to keep track of your treatment schedule and when you are taking your medicine.

Package instructions

Step-by-step instructions to help you safely and efficiently open the NINLARO® (ixazomib) packaging.

The Medisafe App

Stay on track with your medications with the Medisafe app built for NINLARO patients.